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Category Archives: lipedema

Catherine Seo’s documentary about lipedema


A couple of months ago, Catherine Seo of Lipedema Simplified came to my house, shared an afternoon with me and interviewed me for the documentary she was making about lipedema. Here is the result, which she presented at a lymphology conference in Britain: You Mean Its Not My Fault: Lipoedema, A Fat Disorder – A […]

Scholarly piece on lipedema and other fat disorders


Thanks to Catherine Seo of Lipedema Simplified (http://lipoedema-simplified NULL.html) for pointing me to this article by Dr. Karen Herbst: Rare adipose disorders (RADs) masquerading as obesity. (http://www NULL.nature NULL.html) (Scroll down for the lipedema part.) This is a scholarly piece with lots of technical terminology, but one thing I noticed was Dr. Herbst’s ability […]

I am a zebra


It’s a commonly used term in medicine. The analogy goes like this: If you hear hoofbeats, you assume there’s a horse, and you turn around prepared to encounter a horse. But once in a while, it isn’t a horse. It’s a zebra (http://en NULL.wikipedia In my case, the corollary is this: A fat person […]

It’s been a while.


I’ve had a lot going on, of the non-lipedema variety, and didn’t feel moved to keep posting “yep, legs still fat,” so I’ve let this blog languish for a bit. So, an update: I’m still living in a building with an indoor pool, and have benefited a lot from it, both in terms of exercise […]

Thanks Chellie!


I am proud to announce that my Congresswoman, Rep. Chellie Pingree of Maine (http://pingree, today signed on as a cosponsor of HR 2499, the Lymphedema Treatment Act. A bill like this, with no paid lobbyists or big corporate interests behind it, needs all the cosponsors it can get. Please visit (http://lymphedematreatmentact […]

I am confident. I am worthy of love. I am enough.


So the excellent dancer, writer and activist Ragen Chastain (of Dances With Fat (http://www NULL.danceswithfat saw an ad for Australia’s version of “The Biggest Loser,” in which the contestants bemoaned their empty love lives. The implication, of course, is that if you are larger than whatever “normal” is this week, you don’t deserve love […]

On legs


Aimee Mullins has no legs below the knee and relies on prostheses. I have lipedema, which means my legs are big and painful. Both of us can be defined as “disabled.” Yet Aimee is also an athlete, actress, and model, thanks to a wardrobe of prosthetic legs that allows her to decide how she will […]

A farewell


This past month and more has been largely taken up with the troubles of my sister Alice (http://medford NULL.patch, who died Monday after more than a month in a coma. Like me, Alice had lipedema, and in many ways had it worse than I do, despite being two years younger. This year, she seldom […]

Nurse Virginia


I’ve recently become aware of another lipedema blogger — one who is also a registered nurse! Virgina Garberding (http://www NULL.nursevirginiablog is also the author of a book about aging, Please Get to Know Me (http://www NULL.pleasegettoknowme, which encourages health care providers and family members to remember that elderly people are still people, and […]

What do you drive?


A visitor to this site wrote to inquire about whether I knew of any vehicles that had better leg room for lipedema patients. She’s currently driving an older Dodge Grand Caravan but finds that even the newer Grand Caravans have issues — there are pockets and suchlike built into the bottoms of the doors that […]